Lately I have been thinking about my epilepsy and life in general. I've had epilepsy for almost seven years, but it seems like a lifetime. In that time, I have grown and changed a lot and it's been for the better. The lessons I have learned are not all big lessons, either. A lot of them are small.
The thing is, I was so confident before I was diagnosed with epilepsy. As confident as an 8th grader can be, anyways. I loved my friends, school was great; life was good! It's funny how one thing can change your life completely, though. One second you are perfectly healthy, the next second you are having seizures. One day. Seven words from the neurologist. "Two or more seizures is technically epilepsy." Seven words that changed my life. That one seizure in 8th grade was not just a one time thing, as my family and I had hoped. It was the beginning of a new chapter. And really, a new me.
After being diagnosed with epilepsy, I hid it. I didn't tell anyone that I didn't have to. My family knew and that was it. None of my friends at school knew, but I did tell my best friend at the time. I didn't go into details. I told her I had seizures. That was it. And I was not about to tell anyone else I had epilepsy. I'm a freak! Those words were always in my mind.
Rarely was there a time I didn't have a crush on someone. Though at that time, I hoped and prayed that I wouldn't have a seizure in front of them. The summer between 8th and 9th grade (high school) I met quite a few boys that I began to like. It was scary to me because I was convinced I was a freak and I mean I was, right? I had seizures. That's not normal, right?
When I started high school, I got a new group of friends, which meant I probably should have told them I had seizures. Yeah, the only problem was.........that was never going to happen on my watch. I was constantly trying to convince myself that I would be fine and that I didn't need to tell anyone about my epilepsy. Looking back, I am glad I didn't tell them because I broke down every time I had a seizure and they would just stare at me. I did tell one of my friends and they did exactly what I thought they would. They looked at me and said, "okay". Though, when I did have a seizure in front of them, my medication was making sure I only had Complex Partials. My "friend" looked at me like I was an alien. She walked away while I was still in the seizure.
For the first year of being diagnosed with epilepsy, I cried everytime I had a seizure in front of someone. It was mostly hidden, but it happened. It stopped after about a year and though I would still get upset and embarrassed BEYOND BELIEF, I didn't cry. When I have seizures in front of people now, I get embarrassed, but I move on fairly quickly.
Something I have learned over the years is that life doesn't always go the way you want it to. Life can change in the blink of an eye. Never would I have thought I would start having seizures. I didn't think that I would wake up the next morning and have one in the bathroom. No matter how many times I get angry about it. No matter how many times I complain. It's not going to go away. I have to take what I have and go along with it. Yes, I thought my life would be normal. I thought I would be like everyone else, and get my license at 16 years old. I thought I would be able to get through a year of college without having crippling side effects that made me not be able to do what I was there to do: go to class, let alone, take more than two classes.
No matter what you have. If it is something physical or mental. It doesn't matter what it is. Our trials and hardships are equal. Recently, I've felt like I have been complaining too much about my condition, when there are other people out there who have even worse conditions. There are people that can't walk, talk, or do anything by themselves. However, I've learned that it doesn't make it any less of a hardship for me. It is still real. It's as real as someone elses disability. I have seizures. I can't do anything to stop them. I'm on three seizure medications and two anxiety and insomnia medications. It isn't my ideal choice, but it's what I have got to deal with.
No doubt I have learned a lot of things from my journey with epilepsy so far. However, a big thing I have learned is to not be afraid. I cannot even begin to explain how scary it is to have a seizure. It doesn't matter what size or type. Complex Partial, Simple Partial, Absense, Grand Mal; it's the same. All terrifying beyond explaination. I don't have a choice, though. I have my medications which control my seizures enough to where I only have them once a month in a cluster. I hate it, but it's what I have to deal with, and it's my life.
I have noticed that I've gotten a lot more confident lately. I am thinking it is because I am learning that I am not inferior to anyone else. I have my trials and hardships. I have epilepsy, but that doesn't make me a freak. I've gotten to the point where I can tell people I have epilepsy without hesitation. I don't need to worry about what other people say and think. Really. Who cares what others think? They can call you whatever they want. Just....
Please everyone. Don't let the world get you down.
I guess I was lucky my mom had them that when I was told you had them it was nothing new to me. For me it is the normal. I was lucky to have a mother who have them. That made me prepare for others to come into my life. I can make a difference by just knowing the info I know and can help when needed. I don't view it as someone being a freak. Half the time I keep doing what I'm doing or continue talking to someone. Staring doesn't help. You already feel out of the norm I don't need to stare at your soul to make it worse. There is nothing wrong with epilepsy.
ReplyDeleteI really am so grateful to have you as one of my best friends. Especially when you came into my life at such a vulnerable time. You were able to help me through it and show me you don't think of me as a freak.
Deleteto carolee, it is so good to see how you feel about your mom's having epilepsy - that you appreciate what it's done for you in your life. I am a mom with epilepsy, and I often wonder how my child feels about it...
ReplyDeleteSara, great to see you have come so far, and have such an accepting attitude about it. It's tough, but it could be so much tougher if we fight it rather than accept it! And no, you are not, nor were you ever, a freak. Everyone has trials, some are just hidden better than others!