Work has been great. I continue to learn new things everyday, and I love the people I work with. Some of those people have left, but I am grateful I had the chance to work with them. They're all quite different, and I enjoy getting to know each of them. I've been fortunate to start working more hours, as well.
A month or two ago, my mom and sister went to New Orleans to an Autism Conference, starring Temple Grandin, who in my opinion, is one of the most extraordinary people. If you don't know who she is, look her up! A movie has been made about her that I fully recommend. Anyways, I don't remember all of the details, but my mom met a man there who I believe was a pediatric neurologist or epileptologist. He and my mom got talking and she told him about my seizures and the story that goes with them. She made sure to tell him that I have seizures when I am on my period cycle every month. They occur before, during, or after. Oftentimes when I am ovulating. He told my mom that it sounds like I should get my progesterone levels looked at with an endocrinologist, that I would possibly be prescribed progesterone and that that may help with my seizures. It makes perfect sense to me. I read up on it, and I will attach the link to one of the websites. https://www.epilepsy.com/learn/professionals/refractory-seizures/potentially-remediable-causes/catamenial-epilepsy
On Wednesday, I have an appointment with an endocrinologist. The pediatric neurologist my mom met said that I would most likely have to get my blood taken five times this month or next, so they can monitor the hormones in the different stages of my cycle. I am a bit nervous being that I hate blood and I almost pass out each time I get it taken, but it'll be worth it.
Yesterday at work I had some seizures. The night before I had a couple, but they were barely there. Although, yesterday when I woke up, I knew I would have seizures. I had a feeling. Sure enough, later when I was called to the register, I had several in front of customers. I had different reactions, as usual. One lady was nice and made sure I was okay. Another was not cruel, but not kind. Her children were laughing along with her. I'm getting used to the reactions people give me. I have had to endure them since I was 13 years old. They don't affect me as bad, but nevertheless, I'm affected.
I worked today. I cashiered most of the time, and what do you know, it was seizure time! One of them I just told the customer that I was out of it. Another time I don't think anyone noticed, which was great. I have to think of the positive sides to all of this, but I can't seem to find any. I'm not trying to depress anyone, but it's really hard to be positive with epilepsy, you know? I think something positive could be that I could be getting closer to figuring all this out.
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